Martha Rodriguez remembers the moment it occurred to her that nothing would ever be the same. She remembers standing in her kitchen, a stack of bills in one hand and a calculator in the other, when it suddenly all added up for her like a cold slap. At 67 years old, after serving three decades of lunches to children in schools in Phoenix, her Social Security wasn't enough.
Not a chance. Just as soon as the rent on her apartment had increased yet again, she suddenly faced an impossible situation that should never be considered an option by anyone; health care, or a roof over your head.
Sounds familiar? You're not alone. Millions of older Americans, and many people with disabilities, are dealing with this today. I'm referring to people that worked their whole lives, paid taxes their entire lives, and played by the rules--and now are struggling to find an affordable and adequate roof over their heads.
And what really makes me mad about this whole mess is that while politicians are blaming each other and developers are chasing profits, real people are being pushed out of long-term communities.
This isn't some abstract policy debate. We're talking about your grandmother, your neighbor with MS, the veteran down the street who can't climb stairs anymore.
OK, time for some truth. The National Low Income Housing Coalition dropped some numbers recently that'll make your head spin. We're short more than 7 million affordable rental homes for people with extremely low incomes. Seven million. Let that sink in for a minute.
Now, picture this: Your typical Social Security check is somewhere around $1,800 a month. Housing folks say you shouldn't spend more than 30% of your income on rent and utilities—that's $540 if you're keeping score at home.
Go ahead, I'll give you a moment to take a look at Craigslist for apartments under $540.
Found anything with half a chance? Yeah, I doubt it! And even if you do have a disability, I'm sure that is going to be fun for you. You might need a wheelchair, grab bars, maybe even a roll-in shower? At this point, it's not optional, it's a must! And good luck telling landlords who can only see the dollar signs, not you as a person.
A faculty member at Georgetown University, Dr. Elena Vasquez, put it like this, "That's like asking someone with one leg to win third place in a three-legged race!" The entire system is set up in an ill way for those who need assistance the most."
Before you throw in the towel altogether, let me take a moment to talk to you about some programs that might be able to help your situation. Fair warning, it's going to feel like you're juggling flaming knives trying to figure this stuff out, but just stick with me!
Section 8 is like the holy grail of housing assistance. This program is essentially a contract that says, "you pay what you can afford, and we will help you pay the rest." Ordinarily, they will take 30% of your income, and they will pay the difference of rent or whatever the assigned (maximum limit) of their program.
The best part about Section 8 is that you get to choose where you live. Want to stay close to your grandkids? Done. Do you prefer living in a more quiet location? That's great too. You are not assigned a building to live in like college housing!
But—and there's always a but—getting a voucher is like winning the lottery. Some waiting lists are so long they've basically given up taking new names. And even if you score a voucher, good luck finding a landlord who'll take it. Despite what the law says, plenty of them will come up with creative excuses.
Maria Santos, who counsels people in San Antonio, puts it perfectly: "I watch folks with vouchers get door after door slammed in their faces. They've got the money to pay, but landlords act like they've got the plague."
Forget whatever horror stories you've heard about public housing. Today's developments are nothing like the concrete nightmares from decades past. We're talking about decent buildings with community centers, maybe an on-site nurse, transportation to doctors' appointments. Some even have gardens, where residents grow their own produce to eat.
The downside to all this? These places tend to be so desirable, they often have waiting lists. But, if you are elderly or disabled, you will probably get a priority.
For something a little different, instead of you holding the voucher, the support is held in certain buildings. Developers make agreements with housing authorities to reserve some units for people with low-income.
You get the affordability without the headache of convincing landlords to accept vouchers. Many of these newer places are actually pretty nice.
We are speaking about fitness centers, community kitchens, or possibly even a computer lab. The "secret sauce" is mixing incomes, which means you're not in a "warehouse" just with poor people.
If you live in a small town or rural area, the USDA may be your best friend! They understand that rural housing issues are different—limited options, longer distances for everything, and different economic realities.
Their programs include direct loans if you want to buy, rental assistance that works like Section 8, and money to build new affordable housing where none exists. Income limits are often more generous too, recognizing that rural wages are typically lower.
Beyond the big federal programs, there are some targeted options that might be perfect for your situation.
This program helps create housing that is specifically designed to support people over the age of 62. I'm not talking about a developer slapping a ramp on an old building and calling it accessible. These places are built from the ground up with seniors in mind.
The buildings usually come with larger hallways, grab bars in a lot of areas, common spaces designed for people to hang out, and staff that understands how to help older adults. Many of the buildings will have service coordinators. They can help residents connect with healthcare services, transportation services, and other services.
The philosophy is essentially aging in place—supporting the resident in being as independent as possible for as long as they can remain independent.
Section 811 has made a huge transformation. Rather than parking disabled people in separate buildings from everyone else, Section 811 now strives to put disabled people in ordinary apartment buildings with everyone else. They have also changed their focus, from not just housing, to housing and most importantly integration.
The goal of section 811 is to get people job training, help them get services, and empower them to be their own community members.
If you are a disabled veteran VASH may be your ticket home. VASH combines a section 8 voucher along with case management and medical services through the VA. It's a one-stop shop, filling in many roles that housing plays, while also understand housing is just one piece of the puzzle.
The data shows the program has clearly reduced homelessness among veterans by providing housing and importantly support that addresses the multitudes of challenges many veterans face.
While Washington debates, states and cities are getting creative with their own solutions.
Lots of states have figured out how to fund affordable housing without waiting for federal help. They establish trust funds that finance a wide range of things from new construction to preserving currently affordable units.
California's trust fund has sponsored thousands of units that serve seniors and people with disabilities in particular. They are not just building housing—they're building communities with built-in support systems.
Some local municipalities are concluding that long-term residents shouldn't be run out of their neighborhoods.
Boston, for instance, gives priority to elderly residents who've been in the city for years. IIt's an uncomplicated proposition; it should work like this: if you have been part of a community, then that community should take care of you.
Accessory dwelling units—essentially small apartments that some people call houses—are popping up everywhere. Cities are changing the zoning to make these easier to build, becoming the best type of housing for seniors looking to remain in familiar neighborhoods.
Portland is leading the way, expediting approvals and reducing fees for units that meet accessibility requirements.
Result? Greater affordability in neighborhoods already developed.
Not that completing an application for housing assistance is fun, but when you know the rules, you can at least play the game better.
The first thing? This is important—documents are everything. You will be required to provide proof of income, your medical records (if you are claiming some type of disability), birth certificates, current housing status, bank statements, and your immigration status documents.
Pro Tip: Everything should be gathered and put in a binder and labeled with tabs. Housing authorities view and process thousands of applications—it is easy to overlook little things, so don't make theirs any harder.
Most programs will have waiting lists because demand is much larger than supply. However, what a lot of people don't understand is that the wait lists are not necessarily first-come, first-served. There are preference systems that can bump you up.
Common preferences include being homeless, living in substandard housing, paying more than half your income for rent, being elderly or disabled, veteran status, and local residency.
Some places use lotteries to keep things fair.
You don't have to figure this out alone. Housing authorities, nonprofits, Area Agencies on Aging, and disability organizations all have people whose job is helping folks like you navigate the system.
These people know the system, understand local idiosyncrasies, and know where the pitfalls are so that you can avoid them. Use them.
Let's be honest, the system doesn't make it easy. It is likely you will run into barriers. Here's how to push through.
The elderly and those with a disability are protected under the law, however discrimination is still apparent in housing. Landlords will make up excuses, property managers "lose" applications, maintenance won't show up when requested, etc.
Document everything. Keep records of phone calls, make sure to save all emails, jot down names and dates.
If something smells fishy, report it to your local fair housing organization or HUD. These agencies have teeth and they're not afraid to use them.
Finding housing that actually works for people with disabilities remains a huge challenge. The law says landlords have to allow reasonable modifications, but who's going to pay for them?
Look into state and local rehabilitation programs, nonprofit modification services, VA benefits (for veterans), and community development programs. Some assistance is out there—you just have to dig for it.
Getting affordable housing is great, but not if it strands you miles from everything you need. For seniors and disabled folks who can't drive, location matters more than anything.
When house-hunting, think about bus routes, walkability to essentials, proximity to healthcare, access to groceries and pharmacies, and neighborhood safety.
The cheapest rent isn't a bargain if you can't get to a doctor.
Traditional housing isn't the only game in town. Some creative approaches might work better for your situation.
Naturally Occurring Retirement Communities happen when neighborhoods or buildings end up with lots of older residents without being planned that way. The cool thing is, many of these places develop services organically—social workers, transportation, group shopping, activities, healthcare coordination.
If you're in a setting like this you may already be tapping into supports that you didn't even know existed.
Sharing housing together with compatible roommates can save you money while combatting isolation. Some professional programs will screen for possible matches, organize lease or sub-lease agreements, provide ongoing support and have contingency plans for difficulties.
This is not just about financial relief; it redefines chosen family when your biological family is unavailable or far away.
In housing co-ops, you own shares in the corporation that owns the building instead of owning your individual unit. This often means below-market costs and having a say in how things are run.
Limited equity co-ops keep things affordable long-term by restricting how much your shares can appreciate. You get the benefits of ownership without pricing out the next person.
Some communities are piloting tiny house villages for seniors and people with disabilities. These developments include small individual units, clustered together, that surround shared buildings or facilities.
The benefits include lower costs and, importantly, tighter community connections, shared resources and services, and a community approach to support one another.
Housing and healthcare are completely intertwined for older adults and people with disabilities.
Bad housing makes you sick; being sick makes housing harder to maintain.
Stable, appropriate housing actually prevents medical problems. Good heating and cooling, accessibility features, and safety improvements can keep you out of the hospital.
Some healthcare systems are catching on to this, investing in housing because it's cheaper than treating the consequences of homelessness and housing instability.
Many states use Medicaid waivers to provide community-based services that help people stay in their own homes instead of going to nursing homes.
These might include personal care assistance, home modifications, transportation to medical appointments, adult day services, and respite care for family caregivers.
The best affordable housing developments are more than housing; they are places to live and thrive by supporting residents to utilize services.
Coordinated care supports residents in managing health care in their homes, transportation to appointments, medication administration, and responding to community services and emergencies.
It is extremely challenging to budget when living on a fixed income; especially when housing costs, usually 30%, handle a disproportionate amount of the budget.
Every program has limits on income and assets. Understanding the limitations will assist you in your planning and also prevent the error of disqualifying yourself.
Income typically consists of social security, pension, investment income, employment wages, or family supports.
Assets typically will not count your principle residence, 1 vehicle, personal possessions, reasonable burial funds or disability related savings.
This can become very costly to affordable housing. Clients receive value from the Low Income Home Energy Assistance Program (LIHEAP) for heating and cooling assistance, and a range of essential expenditures including crisis assistance, weatherization services, and repairs of limited categories of equipment.
Most utility companies will have a form of living expense, for example; budget billing, energy efficiency assistance options and discounts for older adults and disabled clients.
The less spending you do on food, (or other essentials) will enable spending towards housing. SNAP benefits can reduce your groceries hugely. SSI Supplemental Security Income was designed for access money while living at lower incomes either through disability or seniors.
Knowing your rights, and figuring out how to advocate for yourself can be life improving when housing is concerned.
The Fair Housing Act prohibits discriminatory practices based on age and disability. This means, among other things, that landlords cannot refuse to provide housing to an applicant based on age or disability of that individual.
Landlords, along with all housing providers, must offer reasonable accommodations and reasonable modifications, housing providers must allow service animals, and advertising may not explicitly, or implicitly, exclude protected classes.
The affordable housing problem requires a broad-based response that deals with both immediate needs and persistent trends.
Notable developments include social impact bonds for housing development, land value capture to develop affordable housing, new zoning that uses market demand to diversify housing options, and regional efforts to share resources among jurisdictions.
Boomers who are aging produce a massive increase in demand for accessible, affordable housing in the next twenty years. Moreover, changes in the structure of families mean that fewer citizens over 65 will disable family support networks.
This will require many greater investments in accessible housing, more innovative approaches to service delivery, more effective technology integration targeted at aging in place, and workforce development/human capital for working-age jobs serving elderly and disabled Americans.
Climate change poses specific risks for elderly and disabled citizens who might have difficulties evacuating and adapting to extreme weather. Any future housing should consider new protocols around energy-efficient housing to reduce expenditures for elderly and disabled citizens, backup power for medical devices, flood mitigation construction elements (consider how many disabled folks don't have cars), and a variety of mitigation efforts for heat.
Finding affordable housing as an elderly or disabled person requires a huge amount of due diligence, perseverance, and patience. The system is challenging to navigate, too, and designed to frustrate you. Still, there are a ton of resources for people who are willing to look for them.
The hardest part is the first part. A realistic assessment is as honest an assessment you can do. What do I need now? What resources do I have? What barriers might I encounter within the housing system? Realizing where you're at will help you to develop a feasible plan.
First, research your area and what is available. You can start with your housing authority, Area Agency on Aging, or disability organizations. They can explain your local program — application process — typical wait times.
Consider others on your journey. Housing counselors, social workers, and advocacy organizations exist specifically to help people in your situation. Their expertise can save you time and increase your chances of success.
Be prepared for the long haul. Finding appropriate housing often takes time. Apply to multiple programs, stay flexible about location and housing type, and remember that perfect might be the enemy of good.
Most importantly, don't give up. Each and every day, Americans that are elderly and/or disabled access affordable housing through these programs. You can, too, with patience and perseverance.
The process might seem long and challenging but you are not alone. Resources, programs and people are there to help you succeed and find your own housing security. Your journey to housing security starts with one step - asking for help. That step can be taken today!